My kidneys

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My disease causes little crystals to form in my kidneys, eyes and other organs. The crystals are very small, and you cannot see them. Because of the crystals, my kidney’s don’t work properly. That’s why my kidneys also take good substances from my blood. Because I don’t have enough of these good substances, I’m not growing well. My medicines help clean up these little crystals.

This website is developed by CHIESI NV in cooperation with Belgian experts in the field of nephropathic cystinosis: UZ Leuven, UZ Gent, UCL, CHU Liège, UZA, the patient association for nephropathic cystinosis (https://cystinose.nl/) and Ideate design agency.
23052 – July 2026
Latest update: 2026-07-13
Luchthaven Brussel Nationaal 1K
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