Explaining in your own words what it is like to live with nephropathic cystinosis that’s the purpose of this website.
If you have any questions about the website or about the presentation, please contact your own nurse at the hospital.
You can also get help with practicing how to give the presentation. Veronique Hoex is a presentation coach. She can help you to give your presentation with confidence. Ask for an appointment with her at your hospital.