How do you get cystinosis?

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You are born with cystinosis. It’s not contagious and you cannot get it from someone else like a cold.

This website is developed by CHIESI NV in cooperation with Belgian experts in the field of nephropathic cystinosis: UZ Leuven, UZ Gent, UCL, CHU Liège, UZA, the patient association for nephropathic cystinosis (https://cystinose.nl/) and Ideate design agency.
23052 – July 2026
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